Your Voice: CEO Listening Tour Report Shared
In April 2020, Parkinson Canada welcomed new President and CEO, Dr. Karen Lee, just weeks after the global outbreak of COVID-19. Throughout the summer Karen embarked on an 8-session virtual listening tour with participants from across Canada.
Participants shared their resilience, passion, and determination for the Parkinson’s community through sharing their experiences living with Parkinson’s, involvement in their communities, and commitment to living well with Parkinson’s. The insights that were gathered from the tour have been consolidated into this report and are grouped into five key theme areas.
- Including your voice in decision-making
- Improve connections in communities
- Advance changes in Parkinson’s care
- Drive research innovation
- Build brand and public awareness
Read the report on Parkinson.ca
Parkinson Canada partners with Parkinson Alberta Association to present Virtual Hope Conference
On November 28, Parkinson Alberta Association is hosting a Virtual Hope Conference. Learn more and register at http://parkinsonassociation.ca/virtual-hope-conference-2020 for a day full of sessions aimed at living well with Parkinson’s.
A key highlight: Dr. Ted Fon’s session and QnA on the Canadian Open Parkinson Network.
Parkinson Canada Online Exercise
Staying active is key to managing both motor and non-motor symptoms of Parkinson’s. Parkinson Canada’s Lance Letain is a certified instructor for the Canadian Society for Exercise Physiology.
Get Active with Lance, Dance Classes or PWR! Moves on YouTube Anytime
Parkinson’s Featured on CBC’s You Can’t Ask That on Friday, November 20
CBC’s You Can’t Ask That is a series designed to confront prejudices and break down taboos in society in an authentic and relatable way. Each episode asks a group of Canadians with different disabilities to respond honestly to the awkward, inappropriate or uncomfortable questions they hear all the time, offering them a platform to speak candidly for themselves.
Season 2 Episode 7 features people living with Parkinson’s disease battling stereotypes. Watch Canadians living with Parkinson’s answering the tough questions online now via CBC Gem or live on Friday across the network at 8:30 ET.
ONDRI: Where We’ve Been, Where We’re Going and Implications for Care of People Living with Parkinson’s
The ONDRI is a research program designed to investigate similarities and differences of dementia among five diseases, including Parkinson’s. Their research focuses on improving the diagnosis and treatment of neurodegeneration.
On October 28 at 1:00pm ET ONDRI presented an update on their ongoing research in Parkinson’s featuring Dr. Mario Masellis, Co-lead, ONDRI, and other PD researchers working on the project, including several who you’ve supported through donations funding the Parkinson Canada Research Program.