April Parkinson Post: The Diagnosis Issue

Waiting for a diagnosis of Parkinson's can cause severe depression and anxiety

You know something is wrong, but you don’t have a name for it. You have all these potential diagnoses floating around in your head. In a desperate search for answers, you spend hours on the internet. But that only adds to your stress.  You can’t tackle the problem if you don’t know what it is.  And … Read more

“I think he thought it was just in my mind” ⁠– a young man’s struggle to confirm a diagnosis of Parkinson’s

Bryce Perry’s grandmother passed away just before his 40th birthday. She was 83-years-old, and had been diagnosed with Parkinson’s 10 years earlier. Through her experience, he knew the disease well. When a noticeable tremor appeared in his hand six months later his mind quickly went to Parkinson’s. Could this be? he remembers thinking, before briefly … Read more

Biomarkers as the next big breakthrough in diagnosis and tracking of progression: A patient advocate’s perspective

Photo of Dr. Soania Mathur

Dr. Soania Mathur’s process of diagnosis was comparatively easy when considering some of the other stories you’ve read this month. She received a quick referral to a specialist and within 15 minutes of clinical assessment it was determined she had Parkinson’s. Like everyone else, it wasn’t easy receiving the news. That diagnosis came 22 years … Read more

April News and Events

Happy National Volunteer Week National Volunteer Week runs from April 18-24. In the midst of Parkinson Awareness Month, it’s important that we take a moment to celebrate all the efforts of our volunteers across the country. There is no Parkinson Canada without you. The National Volunteer Week theme for 2021, The Value of One, The … Read more

Announcing your Parkinson Advisory Council Chair: Larry Linton

Photo of Larry Linton, who assumes the role of Parkinson Advisory Council Chair on March 2021

Larry Linton was diagnosed with Parkinson’s in 2012. Like many, he explains the process to receiving that diagnosis as a long one. With uncertainty about symptoms, confusion at points of referral, and a long waiting period for appointments all leading to the final 30-minute matter of fact appointment at which he learned he had Parkinson’s. … Read more

Data-sharing may help advance personalized medicine therapies for Parkinson’s

Photo of Dr. Davide Martino, who leads the Calgary Parkinson Research Initiative (CaPRI) and is seeking patient involvement

For Dr. Davide Martino, who leads the Calgary Parkinson Research Initiative (CaPRI), patient involvement in research is vital. “They can be advocates and advisors to researchers.” The data patients provide can also give researchers information about how Parkinson’s develops and progresses—valuable insights that can lead to tangible improvements in treatment and care. CaPRI has already … Read more