You know something is wrong, but you don’t have a name for it. You have all these potential diagnoses floating around in your head. In a desperate search for answers, you spend hours on the internet. But that only adds to your stress. You can’t tackle the problem if you don’t know what it is. And … Read more
Every day 25 Canadians are diagnosed with Parkinson’s Disease. In 2015, Dr. Harold (Harry) Robertson was one of them, but his path to diagnosis is unlike many others. Dr. Robertson’s journey to diagnosis started in 2009. Having studied the effects of dopamine on brain disorders such as Parkinson’s and schizophrenia for years, he took an … Read more
Bryce Perry’s grandmother passed away just before his 40th birthday. She was 83-years-old, and had been diagnosed with Parkinson’s 10 years earlier. Through her experience, he knew the disease well. When a noticeable tremor appeared in his hand six months later his mind quickly went to Parkinson’s. Could this be? he remembers thinking, before briefly … Read more
Join Tim Hague Sr. on April 29th at 1pm ET for his personal keynote on resilience and for stories that highlight the resilience of our Parkinson Community. In his book Perseverance: the seven skills you need to survive, thrive and accomplish more than you ever imagined Tim shares how his diagnosis of Parkinson’s, his victory … Read more
Dr. Soania Mathur’s process of diagnosis was comparatively easy when considering some of the other stories you’ve read this month. She received a quick referral to a specialist and within 15 minutes of clinical assessment it was determined she had Parkinson’s. Like everyone else, it wasn’t easy receiving the news. That diagnosis came 22 years … Read more
Happy National Volunteer Week National Volunteer Week runs from April 18-24. In the midst of Parkinson Awareness Month, it’s important that we take a moment to celebrate all the efforts of our volunteers across the country. There is no Parkinson Canada without you. The National Volunteer Week theme for 2021, The Value of One, The … Read more
Larry Linton was diagnosed with Parkinson’s in 2012. Like many, he explains the process to receiving that diagnosis as a long one. With uncertainty about symptoms, confusion at points of referral, and a long waiting period for appointments all leading to the final 30-minute matter of fact appointment at which he learned he had Parkinson’s. … Read more
For Dr. Davide Martino, who leads the Calgary Parkinson Research Initiative (CaPRI), patient involvement in research is vital. “They can be advocates and advisors to researchers.” The data patients provide can also give researchers information about how Parkinson’s develops and progresses—valuable insights that can lead to tangible improvements in treatment and care. CaPRI has already … Read more