Ending Parkinson’s Disease webinar
Parkinson Canada is pleased to invite you to a conversation with the author of the book Ending Parkinson’s Disease.
In this “must-read” book for anyone in the Parkinson Community, four leading doctors and advocates offer a bold action plan “the PACT” to prevent, care for, and treat Parkinson’s disease – one of the great health challenges of our time.
Join Larry Gifford from the podcast When Life Gives You Parkinson’s and authors Dr. Bas Bloem, MD, PhD, FRCPE, Dr. Ray Dorsey, MD, Dr. Michael S. Okun, MD on October 7th at 12:00pm ET for a panel discussion as we try to go behind the curtain on the full story of Parkinson’s and what we can do to end it.
This webinar will be conducted in English only.
Event Details
Date : October 07, 2020
Time : 12:00pm ET
Registration Link : Register Here
Contact Name : Ryan Underhill
Contact Telephone : 1-800-565-3000 ext 3452
Contact Email : ryan.underhill@parkinson.ca
The ONDRI is a research program designed to investigate similarities and differences of dementia among five diseases, including Parkinson’s. Their research focuses on improving the diagnosis and treatment of neurodegeneration.
Join us on October 28 at 1:00pm ET for an update on their ongoing research in Parkinson’s featuring Dr. Mario Masellis, Co-lead, ONDRI, and other PD researchers working on the project, including several who you’ve supported through donations funding the Parkinson Canada Research Program.
Event Details
Date : October 28, 2020
Time : 1:00pm ET
Registration Details : Coming soon
You Are Not Alone – e-Book COVID-19 has placed a strain on all of us, especially people living with Parkinson’s. Our Parkinson’s community has found a way to come together and connect virtually by sharing personal stories and words of encouragement. Many compelling messages of overwhelming courage and vulnerability have been compiled into an e-book to share with community members, with an important reminder: You Are Not Alone.
Whether you’ve been recently diagnosed, or have been living with Parkinson’s for years, this e-book is for you. If somebody close to you is living with Parkinson’s or if it’s the reason you’ve lost someone in the past, this e-book is for you. Because three things are truer today than ever before: We deeply need human connection right now. People and families living Parkinson’s are the most resilient, resourceful, determined people in the country. You are not alone. We’re here for you. You are part of an amazing community.
Visit: parkinson.ca/you-are-not-alone/ to reserve your copy today.
Parkinson Canada SuperWalk
SuperWalk proudly celebrates this spirit of perseverance, determination and hope. The walk has used the words No Matter What as a rallying cry since 2019 in recognition of the strength of spirit of the Parkinson Community. This year, no one embodies that perseverance more than Ralph Richardson who was named the ‘National Hero’ for the event this year. Read the press release at SuperWalk 2020
To learn more about Ralph’s story visit his SuperWalk webpage
VIEW ONLINE EVENTS
Parkinson Canada Virtual Education Event: October 29, 2020
Individuals living with Parkinson’s disease, their care partners, family and friends are invited to participate in a free online Parkinson Canada event. Throughout the month of October, Parkinson Canada is embarking on a virtual “road trip” to health regions throughout Manitoba and Northern Ontario, bringing Parkinson’s education, resources and support to local communities.
Join Kelly Williams, Clinical Resource Nurse at Winnipeg’s Movement Disorder Clinic along with Parkinson Canada Community Development Coordinators, Donna Greening & Kerri Lynn Gudz on Thursday, October 29 at 7:30 PM ET (6:30 PM CT) to learn how to live your best Parkinson’s life; Parkinson’s symptom management, overcoming COVID-19 challenges, Parkinson Canada programs and services, and other virtual programs will be discussed. There will also be a special “Ask the Nurse” session. Pre-registration for this free Zoom event is required. Register by October 28 by emailing donna.greening@parkinson.ca or kerrilynn.gudz@parkinson.ca or by calling 1-800-565-3000, extension 3440 or 3442.
November is Falls Prevention month — look for news on a free webinar with Nicole Acerra, PhD, BSc P.T., BA, lead author of Preventing Falls for People Living with Parkinson’s
World Brain Day – July 22, 2020
https://wfneurology.org/world-brain-day-2020
On World Brain Day, the World Federation of Neurology and International Parkinson and Movement Disorder Society hosted a joint webinar. An esteemed panel of speakers took part in a webinar discussion about the global impact of Parkinson’s disease:
- Dr. Susan H. Fox — Chair, Medical Advisory Council, Parkinson Canada
- Prof. William M. Carroll — President of the World Federation of Neurology
- Prof. Tissa Wijeratne — Chair of World Brain Day, World Federation of Neurology
- Claudia Trenkwalder, MD — President of the International Parkinson and Movement Disorder Society
- Prof. Wolfgang Grisold — Secretary General of the World Federation of Neurology
- Associate Professor Victor Fung — Co-Chair of the Taskforce on Pediatric Movement Disorders
In July, Dr. Antonio Strafella presented an intimate Town Hall with early registrants for September’s Parkinson Canada SuperWalk event. In that session, shared in full below, he spoke on his perspective on the role of the Canadian Open Parkinson Network, C-OPN, on the Canadian and international research landscape and on how people with Parkinson’s can partner with the research community as part of this project. https://www.youtube.com/embed/R9-9P0S5gHE
World Parkinson Coalition Partner Highlight webinar on the Canadian Open Parkinson Network. Parkinson Canada’s CEO, Karen Lee, PhD, was joined by leading Canadian Parkinson researchers and co-leaders of the C-OPN, Drs. A. Jon Stoessl, Oury Monchi, and Edward ‘Ted’ Fon, to learn about the new Canadian Open Parkinson’s Network (C-OPN) designed to accelerate Parkinson’s research. To watch the panel discussion visit: https://youtu.be/23g1Lb8LeqI
If you would like to sign up to be a part of the Canadian Open Parkinson’s Network
(C-OPN) to help accelerate research across Canada, and ultimately the world, visit this link to: SIGN UP FOR C-OPN.
Questions? contact communications@parkinson.ca
When Life Gives You Parkinson’s Playing a crucial role in the success of the first season, Parkinson Canada is strengthening its commitment to the When Life Gives You Parkinson’s podcasts with Larry Gifford, only 45 years old at the time when he was diagnosed with Parkinson’s disease in August 2017. In sharing his diagnosis publicly, he discovered that, despite how far-reaching the effects of Parkinson’s disease are, there were few resources that took a human-centered approach. In addition to the advocacy and awareness he does through the podcast, Gifford also sits on The Michael J. Fox Foundation Patient Council and is on the board of the Pacific Parkinson’s Research Institute. When Life Gives You Parkinson’s is available on Apple Podcasts, Google Podcasts, Spotify or wherever you find your favourite podcasts. Listen now.
Parkinson Canada Online Exercise and Wellness Mindfulness & Parkinson’s: How to Use it to Manage Pain & Emotions Presented by Gabrielle Pagé, a clinical psychologist and researcher with expertise in pain management. She explains the impact mindfulness can have on one’s brain and overall well-being. She also provides practical tips on how to integrate mindfulness in your everyday life to manage pain, stress and emotions. Watch Live on Facebook Watch on YouTube Anytime
Watch Anytime: Simple Techniques for Relief from Stress, Fear & Anxiety
Nicole Mahabir, the founder and director of JAI Wellness, a platform for health education, mindful living and wellbeing. In this webinar, she will discuss holistic practices and wellness routines that you can incorporate throughout your day to help with resilience and good rest. Discover mindful breath practices, meditation, cognitive behavioural therapies, relaxation techniques and sleep routines.
Watch on YouTube Anytime Live and Recorded Exercise Classes Continue this Month
Staying active is key to managing both motor and non-motor symptoms of Parkinson’s. Parkinson Canada’s Lance Letain is a certified instructor for the Canadian Society for Exercise Physiology. This month, he’ll offer live classes on Mondays, Tuesdays and Fridays at 2:30 p.m. EDT, on the Parkinson Canada SuperWalk Facebook page as part of SuperWalk: The Movement throughout the month. You can also revisit any of Lance’s past classes, as well as playlist of PWR! Moves and Dance classes on the Parkinson Canada YouTube page. If you’re taking part, consider registering your activity with SuperWalk : The Movement for your chance to win monthly prizes and to inspire others to stay moving this summer. Join Lance live on Mondays, Tuesdays and Fridays at 2:30 p.m. EDT on Facebook Get Active with Lance, Dance Classes or PWR! Moves on YouTube Anytime
| Virtual Care Partner Summit If you, or someone you know is a care partner for a person living with Parkinson’s, or other chronic illnesses, you’re likely familiar with the stress this role can put on you, your relationships, and your ability to address your own wellness. This is likely heightened by the additional stress caused by Covid-19.Last month the team at Parkinson Canada shares with you a virtual Care Partner Summit, three presentations that support care partner well-being. The presentations focus on relationships, caregiver stress, and the social and emotional needs of care partners.For many, a great way to de-stress is to daydream about travel or going on a trip. Our August online sessions have something to offer there, as well. Last February, Steve Iseman, who has been living with Parkinson’s for 8 years and co-captains the Rigid Riders cycling team, trekked to the Everest base camp.https://parkinsonpost.com/a-life-inspired/ |
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| The Invisible Patient Caring for the Caregiver Presented by Dr. Adriana Schnall, PhD, MSW, RSW Watch on YouTube Anytime |
What They Didn’t Tell Me about Caregiving Presented by Neli Gontier Watch Live on Facebook August 19, 2020 2:30PM EDT Watch on YouTube Anytime |
| Personal growth and social connection within our communities: a person centered, community integrated focus on the meaning of being a care partner Presented by Jane Teasdale Watch Live on Facebook August 26, 2020 2:30PM EDT Watch on YouTube Anytime  Order a free copy of Care Partnering:Managing Parkinson’s Disease Together In this book, you will find: · Contact lists for national, provincial and territorial resources · Tip Sheets · Worksheets · ACT on Time™ program · Care Partner Inspirations · Glossary of Terms |