When Jim Long’s sister Pat was diagnosed with early onset Parkinson’s disease in 1972, he wasn’t overly involved in her care. Pat was only 45 years old at the time and she managed her Parkinson’s symptoms and personal affairs with no assistance. As time went on, however, Jim took on more responsibility to help his … Read more
Being diagnosed with Parkinson’s disease at the ripe young age of 35 was more than difficult for Diana Rachlis, but with the help of her family, she’s living a full life and is truly excited about the future. Diana, who also suffers from Dystonia and Celiac disease, was emotionally drained after her Parkinson’s diagnosis and … Read more
On March 5, 2013, Parkinson Society Canada (PSC), as a member organization of Neurological Health Charities Canada (NHCC), participated in a lobby day on Parliament Hill. “The purpose of NHCC’s Hill day was to increase much-needed investment into neuroscience research, establish the framework for a national brain strategy, and ensure all Canadians are protected from … Read more
Welcome to the first issue of e-Parkinson Post for 2013. In this issue, we focus on ways to manage Parkinson’s, particularly using approaches such as lifestyle changes and activities that promote a sense of empowerment. Dr. Susan Fox provides a neurologist’s perspective and shares advice that she typically offers her patients. Alice Templin describes successful … Read more
While doctors and caregivers do play an integral role in the treatment and management of Parkinson’s disease the most important member of any care team is the person diagnosed with Parkinson’s. Parkinson Society Canada has a variety of resources to help you stay informed to make individual choices. We know that controlling symptoms, managing medications … Read more
When Alice Templin’s voice became weaker and slightly raspy due to Parkinson’s, two options sprang to her mind. “I could go for speech therapy or perhaps join a choir.” Alice chose the choir, after discussing it with her neurologist. “We thought, why not try the choir first. It would be fun. It’s a non-medical approach. … Read more
World Parkinson Congress (www.worldpdcongress.org) is being held in Montreal, Canada. from October 1st to 4th. Researchers, medical professionals and people with Parkinson’s from all across the globe will be attending to share ideas, experiences and to exchange advancements in treatment and care management. Visit the WPC website for details about all WPC 2013 activities. Attending … Read more
Parkinson Society Canada recently spoke with Dr. Susan Fox, a neurologist, and asked her a series of questions on self-management of Parkinson’s disease. Dr. Fox shares her expertise, below, and gives some tips for people with Parkinson’s looking to self-manage their condition. How would you define self-management in Parkinson’s? I think it is the concept … Read more