Benefits and risks of participating in a clinical trial

Benefits Clinical trials that are well-designed and well-executed offer excellent opportunities for eligible participants to: Play an active role in their own health care. Obtain referrals to a study site. Engage care partners as companions in care. Gain access to new research treatments before they are widely available. Obtain expert medical, sometimes multidisciplinary, care at … Read more

Ethical Issues in Clinical Trial Participation

Ann Heesters Director of Ethics and Spiritual Care Toronto Rehabilitation Institute Marleen Van Laethem Research Ethicist Toronto Rehabilitation Institute What is a major misunderstanding people have about clinical trials? A clinical trial is a research study testing a new potential treatment. “Therapeutic misconception” is the name ethicists give to the misconception or confusion people have … Read more

New directions in Parkinson’s treatments

Slowing down or modifying disease progression Current drugs for Parkinson’s treat the symptoms but do not stop the progression. One of the biggest investments in Parkinson’s research is in trying to find a drug that will slow down or modify the disease progression. Azilect® The drug rasagiline (Azilect®) was studied recently to determine if it … Read more

National Study of Neurological Conditions Gets Underway

It is with great excitement that we announce that the first-ever national study of neurological conditions in Canada is now underway. Parkinson Society Canada (PSC) has played a lead role in advocating for this study which aims to improve our understanding of the experience and impact of neurological conditions, like Parkinson’s, so that policy makers … Read more

New in Parkinson’s research

Chewing gum holds promise for people with Parkinson’s Family history of melanoma and Parkinson disease risk Toronto scientists awarded $150,000 by Parkinson Society Canada to improve treatment for people with Parkinson’s Ottawa scientists awarded $205,000 by Parkinson Society Canada with funds raised in SuperWalk comments

W5 Program on Parkinson’s disease and Compulsive Behaviours

CTV’s W5 program is looking for people with Parkinson’s and care partners who are willing to share their personal stories about how compulsive behaviour, such as gambling, excessive shopping, eating, and hypersexuality, due to Parkinson’s treatment, has affected their lives. Confidentiality and privacy will be protected. If you are interested in sharing your story, please … Read more

Message from the editor

Welcome to the latest edition of E Parkinson Post! With Parkinson Society Canada poised to look back on almost 45 years of history (2010 will mark our 45th anniversary), we have decided in this issue to highlight some of the things that make Parkinson Society Canada uniquely yours. We focus on how people with Parkinson’s, … Read more