Comments for

Comment on Ontario researchers receive $433,443 from Parkinson Society Canada by Merv J. Cormier

Merv J. Cormier — Thu, 08 Dec 2011 10:51:21 +0000

Your all young and energetic, let’s find a CURE to PD ASAP. For my Grandchildren.

Comment on Your research dollars at work by George Van Den Bosch

George Van Den Bosch — Thu, 08 Dec 2011 05:31:48 +0000

Interesting information.The money given is not huge dollars.

Comment on Medication timing critical in Parkinson’s disease by Bill Ray

Bill Ray — Sat, 03 Dec 2011 04:53:11 +0000

As a nurse I could not agree more with you, hospitals are no place for sick people. My medications are just dumped on me at their idea of a correct time, instead of reading the instructions and asking the patient what time did your doctor tell you to take them.

Comment on Medication timing critical in Parkinson’s disease by Parkinson Society Canada

Parkinson Society Canada — Mon, 17 Oct 2011 15:03:30 +0000

Harry, you’ve done something very wise here. Something, really, that everyone should consider. Step 1: Carrying a listing of your medications, dosages, timings, etc. at all times is very wise, as this can be shared with anyone who may need to see it. It is, as you say, particularly valuable when looking at medication schedules with doctors, specialists, or, when entering the hospital. Such a listing is something that we encourage through the use of our Parkinson Society Canada ‘Get it on time’ medication card. Further, your plan of having a selection of her medications at the ready, should an immediate situation arise is very wise. It means that the facility you visit will have an immediate reference, and, should also help avoid any issues with missing doses upon admittance while waiting for a new prescription to be filled etc. Again, these are both things that we strongly recommend to all people living with Parkinson’s – good for you being proactive, and, thanks for sharing!

Comment on Medication timing critical in Parkinson’s disease by Harry wyma

Harry wyma — Fri, 14 Oct 2011 13:16:20 +0000

For the “critical” timing, what I did some time ago is: I made a detailed list (spreadsheet) of all the medication my wife receives. This includes the medication name, active ingredients, and dosage, and time(s) to be taken daily. We both carry this list in our wallets as well as she in her medication bag. This we present to her specialist as well as at the hospital desk (where it is greatly appreciated). At the hospital they can either keep the list or make a copy thereof. This greatly reduces the chance of any potential mix-up or confusion. She also keeps her bag of medication with her by her bedside should ever an emergency of any kind arise.

Comment on Medication timing critical in Parkinson’s disease by Parkinson Society Canada

Parkinson Society Canada — Thu, 29 Sep 2011 18:50:19 +0000

Thank you for your comment. We do not provide medical advice. Mobility concerns should be discussed with the person’s health care professional. We have a section on our website for Parkinson's related news, that area provides up to date information in the media.

Comment on Medication timing critical in Parkinson’s disease by Parkinson Society Canada

Parkinson Society Canada — Wed, 28 Sep 2011 14:58:12 +0000

Moving to a care facility can be a challenge for individuals and families, as they must adapt to policies and guidance of that facility where you are typically accustomed to managing the condition independently. With that said, we do encourage people to act as their own strong advocates. The hope is that you should never have to surrender your medications without an individualized care plan to ensure that you are going to get them back on time, without missing any doses. Specific to British Columbia, we recommend that you contact your local organization at http://www.parkinson.bc.ca/ with any questions about policy and/or education available for staff. Perhaps you should also share this letter, developed by our Central & Northern Ontario Region with staff at the facility. Written from the perspective of a person with Parkinson’s it outlines why individual medication timing is so vital, and why medications should not be taken from a person living with Parkinson’s: http://www.cno.parkinson.ca/atf/cf/%7B7ED31649-7286-42CC-B7D1-9743D23563F0%7D/plwp%20letter.pdf.

Comment on Medication timing critical in Parkinson’s disease by Heather Gunderson

Heather Gunderson — Sat, 24 Sep 2011 10:51:06 +0000

Do you have any Stats on Knee Replacement Surgery for people with Parkinsson;s? Apart from the Medication issue,I am concerned about further complications as there are already moboloty concerns.

Comment on Hope and determination drive Parkinson SuperWalk to success by Parkinson Society Canada

Parkinson Society Canada — Fri, 23 Sep 2011 12:57:50 +0000

Thank you very much for your feedback. Parkinson SuperWalk is a celebration of families and friends in 95 communities across the country and it is run largely by volunteers with the assistance of staff. All of them work tirelessly to deliver great results and our walkers take pride in approaching their family members, friends and colleagues for support, because they are passionately committed to the cause. We salute them. This year, we have raised $2.4 million so far and climbing since we are accepting donations until October 3rd. Considering the economic uncertainty for many individuals, we are proud and grateful to have to such committed supporters.

Comment on Medication timing critical in Parkinson’s disease by Anonymous

Anonymous — Thu, 22 Sep 2011 05:10:53 +0000

My Mother had just refilled her Parkinson’s prescription and was subsequently moved to a care facility, but was unable to take those pills along with her or use up that prescription as they would not allow any medications to be used previously filled even though there was no change in the medication or dosage. They felt it was a security issue.
The care facility is in BC.

Comment on Hope and determination drive Parkinson SuperWalk to success by Sue

Sue — Wed, 21 Sep 2011 22:55:23 +0000

Why isn’t SuperWalk raising more money? Proceeds are down this year – we never hear any promotions about it, there are no sponsors and it just seems like no one puts much effort into this. It needs to raise more for work! I think there are lots of staff at Parkinson’s and this should be a piority to raise funds not decrease funds.

Comment on Message from the Editor by Anonymous

Anonymous — Wed, 21 Sep 2011 17:27:10 +0000

Very much enjoyed reading this e-newsletter. Very easy to navigate on my IPad. I’m out of country for a few months and am glad to learn about Superwalk success and the “get it on time” initiative. The articles are succinct and informative.

Comment on Palliative Care in Parkinson’s by Parkinson Society Canada

Parkinson Society Canada — Tue, 20 Sep 2011 19:17:30 +0000

We suggest you get in contact with our regional partner via their website: http://www.parkinsonquebec.ca/__fr/